We all have our "firsts" in life that we go through, for example our first car, a first girlfriend, first kiss, first bike, etc. But when you have Cystic Fibrosis, growing up our "firsts" are....well, a little different.
Some of the "firsts" a CFer may go through, are some firsts that maybe someone without CF won't experience until they are a lot older, or sometimes not at all!
Here are some of my CF "firsts"
Cough- At Birth (August 15, 1990)
Shot- 5 hours old
Sugery- 6 hours old
Antibiotic- (see first shot)
Halloween Costume (in hospital)- 2 months old
First Hickups- 3 months old
Diagnosis- 3 months old
CF Doctor- 3 months old (Dr. Sielhiemer) she's been in the business for 25+ years!
Case of Pneumonia- 4 months old (due to asperation)
Breathing Treatment- 4 months old
Day Home- 5 months, 1 week, and 2 days old
Check Up- 3 days after my first day home
PFT- 8 months old
Haircut- 1 year old
Dose of Pulmozyme- 2 years
Sibling- 3 years old (april 30, 1993)
Day of School- 5 years old (August 22, 1995)
Hospital Stay During the School Year- (August 29, 1995)
Graduation- 5 years old (delayed due to surgery)
Real Friend- Morgan Williams (1st Grade) '96
Dose of Tobi-8 years old (it was still in clinical trial stage)
Nasal Surgery- 11 years old
Vest Treatment- 12 years old
Make a Wish Trip- 18 years old (March 16, 2009)
Longest Hospital Stay- 18 years old (40 days)
CF walk- 18 years (may 16, 2009)
These are just a few of my "firsts" and if you have CF your "firsts" may look similar to this, and I would love to hear about them just leave me a comment and tell me what you think or if theres anything else I might have missed and I would be glad to post it up!
Heres a picture you might enjoy,
Its me when I was in the hospital April 30, 2009
Sometimes a hospital stay will bring out your crazy side;)