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Thursday, July 23, 2009

My CF "firsts"

We all have our "firsts" in life that we go through, for example our first car, a first girlfriend, first kiss, first bike, etc. But when you have Cystic Fibrosis, growing up our "firsts" are....well, a little different.

Some of the "firsts" a CFer may go through, are some firsts that maybe someone without CF won't experience until they are a lot older, or sometimes not at all!

Here are some of my CF "firsts"


Cough- At Birth (August 15, 1990)

Shot- 5 hours old

Sugery- 6 hours old

Antibiotic- (see first shot)

Halloween Costume (in hospital)- 2 months old

First Hickups- 3 months old

Diagnosis- 3 months old

CF Doctor- 3 months old (Dr. Sielhiemer) she's been in the business for 25+ years!

Case of Pneumonia- 4 months old (due to asperation)

Breathing Treatment- 4 months old

Day Home- 5 months, 1 week, and 2 days old

Check Up- 3 days after my first day home

PFT- 8 months old

Haircut- 1 year old

Dose of Pulmozyme- 2 years

Sibling- 3 years old (april 30, 1993)

Day of School- 5 years old (August 22, 1995)

Hospital Stay During the School Year- (August 29, 1995)

Graduation- 5 years old (delayed due to surgery)

Real Friend- Morgan Williams (1st Grade) '96

Dose of Tobi-8 years old (it was still in clinical trial stage)

Nasal Surgery- 11 years old

Vest Treatment- 12 years old

Make a Wish Trip- 18 years old (March 16, 2009)

Longest Hospital Stay- 18 years old (40 days)

CF walk- 18 years (may 16, 2009)

These are just a few of my "firsts" and if you have CF your "firsts" may look similar to this, and I would love to hear about them just leave me a comment and tell me what you think or if theres anything else I might have missed and I would be glad to post it up!

Heres a picture you might enjoy,

Its me when I was in the hospital April 30, 2009

Sometimes a hospital stay will bring out your crazy side;)

1 comment:

Lucy's mom said...

What did you get to do for you 'make a wish'?