It's my LEAST favorite thing to do, when I post a negative topic, but honestly this is the truth of CF. Sometimes you get tired of it and you just want it to go away. And the truth is, it wont. And you definitely can't help it by not doing anything at all! (I'm talking to myself here)
I've got a dilemma here...
I HAVE a disease, there's no doubt about that, It's Cystic Fibrosis. I have to do many things daily to TREAT it. There is NO cure. If I don't do the things to TREAT CF daily, It won't be good for me.(lets just put it that way) 1,000s of people go through the same exact problems as me DAILY. 100s of thousands have it, or something else, 1 billion times worse than me.
Here's my dilemma...
We live in a WORLD were we are supposed to be politically correct and aren't supposed to offend anyone. Sometimes my coughing is loud, offensive. Sometimes me saying "don't smoke around me I HAVE CF" is offensive.
So what do I do??
I ignore my disease, push it to the side, hide it away, only deal with it when I'm alone in my room. BAD
Here's another problem, I mix the WORLD's expectations with the CHURCH's expectations.
When your not of the CHURCH, you're of the WORLD. The world doesn't want us to offend people, and to be politically correct all the time. I try not to offend people at the church either.
1.) Good news and bad news
When people of the church hear a good report its a GOOD thing. But then if you go around spreading bad news its NOT GOOD. It's offensive.
2.) Claiming the disease
Your not supposed to claim your disease as "your" disease. But I say, "If you don't claim it how will you TREAT it?"
What are you doing treatments for? uhh... Nothing.
3.) Talking about the disease
It helps me to talk to people with CF about CF. I learn a lot on what I can do less, or what I can do better. I also like to talk to my family and friends about CF. But quite frankly, people get tired of hearing about you talk about CF all the time.
So what do I do??? Again I put it away like it's not there, I ignore it, neglect my own health to make people happy, to be politically correct.
No one likes to hear you talk about how much weight you've gained or what color your spit was. They're trying to LOSE weight not GAIN.
This is just how I've been feeling lately, I know it's bad and I should forget about what people think and just take care of myself no matter what.
Please feel free to comment or message me at firstname.lastname@example.org and PLEASE correct me if i'm wrong on ANY of this logic! This is just how it's been presented to me lately and I really don't like it and don't know what to do about it.