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Wednesday, October 13, 2010

Awesome Day:)

So today was AMAZING! Got some good news to tell you!

First, my PFTs were UP UP UP!!! Fev1 71% and Fvc 84%, which is up 30% from a week ago. Maybe I should explain why my PFTs were so low last time before everybody freaks out...

Okay, so 3 weeks ago I was ordering my medicines and the pharmacy informed me that my medicaid TERMED! Which meant I had NO INSURANCE...NO MEDICINE!! So I immediately got on the phone with the medicaid company and tried to work it out. Long story short, they said they couldn't help me because I was over 18 and I would be eligible for Medicare May 2011, 6 MONTHS FROM NOW. So I had a doctors appointment and from 3 weeks of no meds my PFTs, as expected, were DOWN to 40% Fev1.

Second, everything is getting worked out and GOD IS GOOD!! My social worker is helping me get some free meds until I can get it straightened out, and this hospital stay will be a charity case.--GREAT NEWS!!

Third, I have had an awesome day with my friends I met this week through a ministry at my Church called Inside Out. And I have got to spend a lot of time with them this week while in the hospital. They live under the bridge here in Houston. I have never met anyone like them before, they have so much integrity and love for each other. They really know what it means to share and look after each other. We had a great time praying and sharing the word together. OH! and I caught a Catfish!!

God has really shown me what it means to Pray Sincere lately. Like not praying for the hungry if you're eating out everyday. I can't pray for the homeless and the people who are down and out if I'm not willing to walk a mile with them, put down my wants and my needs and live in the environment that they live in- even if I have CF! So today one of my friends(Terry) came and visited me all day while I was in the hospital, meanwhile one of my other friends was trying to fish. Terry must have been up here for 5 hours when he decided to go check on the other guy. So we both rode the train over to the bridge by the river. The guy didn't catch anything! I told him if we ask God to bless the line, he will, and we will have us a fish to eat! As soon as I touched the line I got a bite, pulled it up and there was a nice sized catfish on it!! Praise the Lord!!! It really meant a lot for them and opened my eyes that we worry about what clothes we'll wear or what car we'll drive or the latest cell phone and there are people right outside our doors that have no idea if they will even eat tonight. I want God to break my heart for THOSE people. I want Him to give me the compassion and love that heals the sick, feeds the hungry and shelters the poor.

Here are some pics from today!!

He was a little bit afraid of the fish:)

Scissors always help:)

Terry is teaching us how to cut up the fish and use some parts for bait.


And Fourth, I am possibly getting out of here Friday, so I am excited for that!!

I hope this post has blessed you and inspired you to take a look around your community and see with God's eyes people who are just like you and me who need the love of Jesus. The Church in Acts was a family, everyone shared and loved one another, when you love one another the way Jesus intended it to be, that's when a movement begins. Let's start a movement together, a prayer movement, a SincerePrayer movement. Let's keep it going!!

Matthew 28:19-20 "Go and make disciples of all nations, baptizing them in the name of the Father and of the Son and of the Holy Spirit, and teaching them to obey everything I have commanded you. And surely I am with you always, to the very end of the age."

Monday, October 11, 2010


Oh wow. It has been a long time. Hopefully people still read this thing, if not oh well, at least I get to get something off my chest.

So a lot has happened since the last time I was on here. I graduated bible college and started working at my church. Right now I am in the hospital and I'll probably be in here for a couple of weeks. I want to get up to 150lbs at least. I've been spending a LOT of time in prayer and in the Word. God has shown me lots of new things and revealed to me amazing truths. He really has made me a new creation, and given me a new heart-His heart. All along I have been claiming to be a new person but 1John talks about if you don't know Love then you don't know the first thing about God because God is Love.

When I found this out I was pretty concerned- Not knowing God?!?! That's a big deal, I mean were talking about my eternal state here. So for weeks I would cry out to God and ask him to take over my life and change me. And on August 7th, 2010 in the hospital I layed on my back for 3 hours while God poured his Love out on me. He showed me who He really is. This God has a big Heart, He created every single one of us and desires to have an intimate relationship with all of us individually. He Loves the WORLD. I mean go check out John 3:16. But I didn't love the world. I loved Casey, I was concerned about others but I didn't Love them. I wanted God to bless me so I could be somebody, not so I can glorify Him. I thank God for giving me a heart for the world, because EVERY believer is called to the world. The reason why 1.4 billion people have never heard the name of Jesus and 26,000 children die everyday from preventable diseases and starvation is because His disciples aren't doing their Jobs. I refuse to sit back and be ordinary, I'm determined to be RADICAL.

This brings me to my next subject, The Radical Experiment.

Experiment: a course of action taken under controlled conditions in order to test a claim.

Living a life of a disciple isn't easy, Jesus didn't promise that. Matthew 10 explains that the life of a disciple is dangerous at best. Over the next year I am committing to 5 things...

1.) Pray for the entire World- there is a website called www.OperationWorld.org which provides specific information on Countries in great detail of what to pray for.

2.) Read through the entire Word- No matter the conditions I will read everyday until I finish the entire Bible.

3.) Sacrifice my money for a specific Purpose- Not just the general "poor" but a specific need in my community.

4.) Spend my time in another context- Over the course of a year I will spend at least 2 weeks in another environment and share the Love of Jesus.

5.)Commit my life to a multiplying community- in Matthew 28 Jesus commands us to go out in the world and preach the Gospel, teach obedience and make disciples, I will make disciples!

These Challenges as well as a ton of great information are explained in detail in the book Radical by David Platt.

THIS IS WHERE YOU COME IN! -If your willing, I would like to pray for every person specifically that has Cystic Fibrosis. It could be general or it could be personal. But everyday I will commit to praying for all my Cystas and Fibros. So if you will, my email is caseyjonese343@yahoo.com, send me and email letting me know what to pray for, and I can send you my phone number and pray with you directly too, if possible.

You see the life of a disciple and the life of a CFer doesn't mix. CF is designed to keep us down and out all the time. That is not God's will, God's will is that we are HEALED COMPLETELY. So we can bring Glory to his Name and fulfill what he has called us to do.

I am believing for complete healing for your lives and mine. I'm already taking some Radical steps in pursuit of being totally free from the bondage of Cystic Fibrosis, I'll explain a little bit later. So send me a message if your interested, and leave me a comment on what you think about this post- Good or Bad, I'm an open guy. But hopefully good.

God Bless!

Sunday, January 3, 2010

Holidays in the hospital!

Hey everyone!! Man I miss being on here!! So what is going on in Casey Jones life?
Well today I'm in the hospital, I'm getting out tomorrow!!!! 2 weeks ago I had a doctors appointment and my lung functions increased 9%, but from a previous 20% drop, it was time to come in for a tune-up;)

When your in the hospital it can be two types of experiences; Good or bad.
When I'm in the hospital I try to make it awesome and with my friends and families help it always is!

On Christmas my family came over and spent the night with me, my youth pastor brought me all kinds of decorations for my room and we had a photobooth!

On New Years we had decorations and a dance party It was fun!!!!!

All hospital stays, even HOLIDAY ones can be Fun!

So thats my holiday update, Sorrry it's so short, I'm exited to get out tomorrow!! And I'm pumped for 2010!!! God Bless You, and leave lots of comments!!!